Dr. Jay Piccirillo. An Ear, Nose, and Throat doctor at the Washington University School of Medicine Hereditary Hemorrhagic Telangiectasia (HHT) Center of Excellence, and his research team are developing a new health status and quality of life measure for patients with HHT.

His team is reaching out to the HHT community for additional feedback on how HHT creates physical problems, functional limitations, and emotional consequences in your life. The goal is to create a valid patient-reported instrument that can be used in future HHT studies.

To participate, respond to the questions given. Your time in helping us advance the scientific understanding and evaluation of HHT is much appreciated. This survey seeks to understand how your Hereditary Hemorrhagic Telangiectasia (HHT) has affected your day-to-day life. 

Please complete this survey only if you are an adult (18+) with HHT. 

Thank you for taking the time to complete this survey!

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